Another day at Fain Park and some updates

The kids wanted to go to Fain Park again today to show Tyler around. We took a picnic and hiked. Today we saw some fish, a turtle, a frog, some crawdads and ducks. When we were at all done at Fain Park we went to Dairy Queen and got some ice cream. Right now Tyler is on his way to his soccer game. The kids and I decided to stay home. We are pretty tired. Me especially, after our 3 hour hike yesterday the kids made me play soccer with them at the park by our house. And then hiking today.....phew!

So, yesterday Dad had a lot of visitors. It was good for him, it lifted his spirits and he was in a good mood all day. During therapy he was taught some tongue exercises to build the muscle back up.  The back of his tongue is not working properly, it is not pushing the food in the direction it needs to be pushed so when he swallows it goes the wrong direction and heads to his lungs rather then his stomach. There is much more to it then that but since I have no idea what they are talking about, to much medical lingo, that is how I will explain it. Once he builds the muscle again he should be in good shape. They will do another swallow test on Monday or Tuesday to see if the exercises helped enough to remove the feeding tube. Lets really hope for this. The feeding tube is driving him CRAZY!!

I just learned that a nurse has been sleeping in his room at night because he doesn't like to obey the rules. He won't wait for a nurse to help him out with anything. He just gets out of bed and takes care of everything himself. This isn't allowed because he is still a little wobbly, and he was still hooked up to all of his paraphernalia so he would just drag it across the room with him. Haha! He has since been removed from all of his IV's.  The only thing he still has is the darn feeding tube. Mom stayed with him last night and he slept very well. It was the first time they weren't in every hour doing a sleep study, checking blood pressure or checking IV's. He woke up today feeling very refreshed.

Today he had some therapy, they took him outside to walk over river rocks. He did a great job. The PT's are all very impressed with how well he is doing.  He has had visitors again today which he enjoys very much. Mom has not called me very much today. I have not been getting updates as often but I think she is enjoying having someone there with her. So I'm not going to bug her. I will update as I hear things.